Research Reports

1.     Ravilly S*, Robinson W*, Suresh S, Wohl ME, Berde C. Chronic Pain in Cystic Fibrosis. Pediatrics 1996. 98(4);741-46. 

2.     Robinson WM, Ravilly S, Berde C, Wohl ME. End of Life Care in Cystic Fibrosis. Pediatrics 1997. 100(2);205-9

3.     Truog RD, Robinson WM, Randolph A, Morris A. Is Informed Consent Always Necessary in Randomized Controlled Trials? New Eng J Med 1999. 340(10);804-7.

4.     Robinson WM. Palliative Care in Cystic Fibrosis. Journal of Palliative Medicine, 2000,3(2);187-192.

5.     Truog RD, Burns JP, Mitchell C, Johnson J, Robinson WM Pharmacologic Paralysis and Withdrawal of Mechanical Ventilation at the End of Life. New Eng J Med 2000. 342 (7); 508-511.

6.     Robinson WM, Waltz DA. FEV1 as a guide to lung transplant referral in young patients with cystic fibrosis. Pediatric Pulmonology 2000; 30; 198-202.

7.     Robinson WM. Ethical Issues in Pediatric Research. J Clinical Ethics, Summer 2001, 11(2); 145-150.

8.     van Luijn HE, Musschenga AW, Keus, Robinson WM, Aaronson NK. Assessment of the risk/benefit ratio of phase II cancer clinical trials by Institutional Review Board (IRB) members. Ann Oncol, 2002, Aug; 13(8): 1307-13.

9.     Truog RD,  Robinson WM. The Role of Brain Death and the Dead-Donor Rule in the Ethics of Organ Transplantation. Critical Care Medicine, 2003, 31(9); 2391-6.

10.  Graham R, Robinson WM. Integrating Palliative Care into Chronic Care for Children with Severe Neurodevelopmental Disabilities. J Dev Behav Pediatr. 2005 Oct;26(5):361-5.

11.  Graham RJ, Fleegler EW, Robinson WM. Chronic ventilator need in the community: a 2005 pediatric census of Massachusetts. Pediatrics. 2007 Jun;119(6):e1280-7

12.  Sawicki GS, Sellers DE, Robinson WM. Adults with cystic fibrosis report important unmet needs for disease information. J Cyst Fibros 2007; 6:411-416.

13.  Sawicki GS, Dill E, Asher D, Sellers DE, Robinson WM. Advance Care Planning in Adults with Cystic Fibrosis. J Palliative Med 2008; 11(8):1135-1141.

14.  Sawicki GS, Sellers DE, Robinson WM. Self-reported physical and psychological symptom burden in adults with cystic fibrosis. J Pain Symptom Manage. 2008 Apr;35(4):372-80.

15.  McGuffie K, Sellers DE, Sawicki GS, Robinson WM. Self-reported involvement of family members in the care of adults with CF. J Cyst Fibros. 2008 Mar;7(2):95-101

16.  Wasan AD, Taubenberger SP, Robinson WM. Reasons for participation in pain research: can they indicate a lack of informed consent? Pain Med. 2009 Jan;10(1):111-9. Epub 2008 Jul 24

17.  Adler FR, Aurora P, Barker DH, Barr ML, Blackwell LS, Bosma OH, Brown S, Cox DR, Jensen JL, Kurland G, Nossent GD, Quittner AL, Robinson WM, Romero SL, Spencer H, Sweet SC, van der Bij W, Vermeulen J, Verschuuren EA, Vrijlandt EJ, Walsh W, Woo MS, Liou TG.  Lung transplantation for cystic fibrosis. Proc Am Thorac Soc. 2009 Dec;6(8):619-33.

18.  Robinson WM Palliative and end-of-life care in cystic fibrosis: what we know and what we need to know. Curr Opin Pulm Med. 2009 Jul 30.

19.  Klick J and Robinson WM. Palliative Care in Cystic Fibrosis. chapter in Lung Biology Series on CF, 2011.

20.  Dellon EW, Klick J, and Robinson WM. Palliative Care in Children with Cystic Fibrosis. chapter in Textbook of Interdisciplinary Pediatric Palliative Care, eds Wolfe J, Hinds P and SourkesB; (Saunders, 2011)

21.  Klick J and Robinson WM. Palliative Care in Cystic Fibrosis. chapter in Cystic Fibrosis: Lung in Health and Disease, eds Allen JL, Panitch HB, Rubenstein R. (Informa:2010.)

22.  Stenekes SJ, Hughes A, Grégoire MC, Frager G, Robinson WM, McGrath PJ. Frequency and self-management of pain, dyspnea, and cough in cystic fibrosis. J Pain Symptom Manage. 2009 Dec;38(6):837-48.

23.  Sawicki GS, Sellers DE, Robinson WM. High Treatment Burden in Adults with Cystic Fibrosis: Challenges to Disease Self-Management. J Cyst Fibros2009; 8(2):91-96

24. Robinson WM. Palliation of dyspnea in pediatrics. Chronic Respiratory Disease, August 7, 2012.

25. Sawicki GS, Heller KS Demars N, Robinson WM. Motivating Adherence Among Adolescents With Cystic Fibrosis: Youth and Parent Perspectives. Peds Pulmonology, 2014

26. Robinson WM. Ethical Issues in Invasive Ventilation. in Caring for the Ventilator Dependent Child (eds, Sterni and Carroll, 2016)